Well here we are, its Christmas Eve, and Mum seems to be doing ok.
We had her hospital bed delivered on Wednesday...............but it was just that............the bed........not a matress in sight! After a phone call I was promised the matress for Thursday.
So I cleaned all the front room and got her bed into place.
The slow release morphone pills dont seem too bad. but the nutritional drinks she is struggling with, saying they taste awful.
I was having a look at the website for them, fortisip they are called, they do different varieties so I think she just has to keep trying them.
Just as I was cleaning the house, a pipe burst in the garage. What joy! Between teh family we have managed to do a make shift job, but really makes me wonder how people with no family cope if they are in the same situation as mum.
When the Macmillan nurse came I spoke to her about my sister doing too much and not getting a break.
When we were all together she mentioned a local hospice to mum, I think at first mum thought she meant as an in-patient so mum was saying no i dont want to go.
We didnt realise that they offer a day visit where they can come and pick mum up and take her, look after her, and then drop her off a few hours later.
While she is there she could have spa's and relaxation therapy's. They have hydrapools and things. Sounds really good.
Apparantly on reading the website they can offer a lot of support for my sister too. Practical and emotional advice and she also can go and get her nails or hair done.
We have asked the Macmillan nurse to refer us. I think it will do everybody some good.
Yesterday the matress came and I went and bought new bedding so she is all set up now for Chrismas.
I think this year will be a weird one. But maybe there is a greater lesson to be learnt........... We know this Christmas will be our last as a complete family...........many people dont know so maybe we should treat each day like its our last.
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