A very quick post this morning as we have a lot to do today.
Yesterday was so busy, phonecalls and people coming to Mums house, after doing a lot of whinging we got visits from the gp, district nurse and macmillan.
Today I have to go to the gp's to pick up a prescription which contains 'end of life' drugs.
When mum stops being able to swallow her pills, any drugs can be given through battery operated driver. Once we have them in the house then everything is to hand.
The hospital bed from the front room is being dismantled and moved upstairs to mums bedroom, which we have to dismantle and drain her bed (its a waterbed!).
She now has a pain which the gp thinks could be something to do with her liver.
This morning the palliative care team are coming to discuss things and later this afternoon the occupational therpay are coming to discuss aids to help us.
Yesterday morning we managed to get mum to the bathroom and let her sit on the edge of the bath while she sponged herself down.
This alone was so traumatic. It took ages and a lot of pain and tears to get her to the bathroom.
She doesnt want anyone else to look after personal care and was even funny about me being there yesterday aswell as my sister.
We have been told to have a think about what would help us out but we feel like we are in a viscious circle as I think first we need to know what help IS actually available to enable us to decide.
Right lets going on today!!!!
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